Hello Everyone, I’m sitting here at HFH beside Kerrie as she tries so very hard to stay awake and watch one of her favorite shows “Hell’s Kitchen”. Go figure, a reality cooking show. We watch it faithfully every week. It has been an extremely long and emotional day. Dr. Jana came in with the team fairly early this morning. The first thing she did was pull up a chair and ask where one was for me (covered in pillows and blankets, but I pushed it over). I know that meant we were going to talk and we did. She was very straight forward and talked directly to Kerrie about what…

Hectic day.. but finally able to relax with my sister. Got here at 5:00pm and Dad and Joyce were here, so got to see them too! According to Dad, Kerrie ate a pretty good lunch.. and then she had a good dinner! Mom says she’s eaten more today than she’s had all week. Right now were watching tv, and watching the clock…dilauded time! I think it’s going to be an early night for both of us. She’s getting her nightly meds and I’m getting ready to crawl into that comfy little couch bed. Kerrie has a message for everyone… she said “tell them that I miss them and I’ll talk…

July 13th sucks. I hate to even have to remember what we all went through, a year ago today, but I know exactly what we were doing exactly at this minute… Mom was in her room, with a broken heart, Kerrie was in her room.. on the computer.. looking up Myelodisplastic Syndrome.. I was in the basement.. on the computer.. looking up Myelodisplastic Syndrome. As I sit here, I am almost reliving the horrifying shock of reading the words on the screen.. reading the diagnosis…. reading it again because I couldn’t believe it…hyperventilating.. the pit in my stomache as I ran in circles around the room, silently screaming.. trying to…

Hello Everyone, Sorry, I have lost the address for the post again…. don’t know what happened, so hopefully Jenn will move this for me. this will be short and sweet, bittersweet I fear. I don’t have the energy to go in to details right now, and don’t have many details to give you, but things are not going well. Kerrie is sleeping soundly right now, thanks to many drugs, as she has had a bone marrow biopsy (again) today and then more blood transfusions. The doctors are trying to identify just what is happening, but we do know that the leukemia is coming back in full force. What we don’t…

Kerrie’s back in the Hospital… She broke out in a head-to-toe rash today, so Mom took her in. They’ve decided to keep her there for a few days. Not sure what’s causing it, since she really doesn’t have any new meds, but a rash is one of the signs of GVHD so she could be having issues with this in an area other than her liver and gal bladder.. or it could be those.. or it could be something completely diffferent.. or could be something esle all together. No idea. I have now decided that Ron, Alisa and the kids are no longer allowed to come visit me in July.…

No word from Mom yet I guess… I did talk to her, briefly, last night so have a little information. Hopefully Mom can give more info later. The trip to Henry Ford went well. Her Billy Rubin ( have to find out how this is really spelled) is down below 3.. which is good. They have to get it down to at least 2 to be able to do any more treatment. She didn’t need platellets.. also good.. but her white blood cell count was up to 14. It was 10 or 11 last week.. big jump in a few days, so this isn’t a good sign, but could be…

No posts since Friday… and I know people have been checking the site over and over. It was a very hectic weekend, with Mom working… me trying to get back into the swing of playing “nurse at beck and call”.. phones ringing.. other phones ringing while I was on one phone.. double lines ringing while the other phone ws ringing.. it was crazy. No time for me to get on the computer and, obviously, no time for Mom to get on the computer since I left on Sunday night. I’ve been checking the site as much as everyone else…ahhemm.. Mom… hint.. hint..:) I didn’t get a chance to talk to…

It’s a little after midnight.. so happy 07/07/07 everyone! After a long week of work, and a long drive, made it to Mom’s at a little before 11:00pm. Was expecting to find Kerrie asleep, but she was out of bed and watching tv when I walked in. “Is our mother torturing you?” “Is our mother torturing me???” “Yeah.. it’s almost 11:00pm and she has you out of bed. Is she torturing you?” “HAAA… Noo.” I walk out to the car, to get my other suitcase, walk back in the house.. and Kerrie’s folding towels. “OH MY GOD! She gets you out bed, late at night, and makes you fold laundry?????…

Lunch is over, meds are given and Ker is napping…. I am getting ready for work. Yesterday was just a bit hectic… up early to get ready for an 8 am pick up to go to HFH. Hurry down, get blood drawn, then wait for the team. Ker didn’t mind too much as she had her comfortable recliner and personal flat screen TV. Not much news at this point, will have more info on the labs on Friday. She did get her Benadryl which promptly put her to sleep. She needed platelets and always has premedication to avoid a reaction. She was supposed to get two more IV meds, but…

Just a quick note……….had a nice day….. Ker was up a lot, smiling and really with the program…. actually asked to get up today…. guess she’s tired of staying in bed. Her brother Ron was here for quite a while today, visiting and helping. He had some basic lessons in how to take care of Ker, some he wanted and some he didn’t.  But he charged in like a brother would do, and did a good job too. won’t go in to details, but, thanks Ron, you’re a trouper. Got my garage cleaned up a bit too……that was a job I dreaded and does it look neat now! Tomorrow is…