-
Sunday, November 5th
we’ve had some good news today! The ICU team feels Kerrie is no longer in need of being in ICU and want to move her back to her old room, on P2, this afternoon. The BMT Team ( Bone marrow transplant team) is reviewing this to see if they agree. Nuerology has decided they will not attempt a brain biopsy as the risks would be greater than the benefits, so it looks like that will not be happening. The doctors don’t know anymore than they did before and leave it to Kerrie to stump them. The CT scans and MRI’s show the infection, or whatever it is, is spreading…. but…
-
Saturday, November 4th
I finally have a few mintues to get on a computer so I will update you, as much as I can… The power cord to my computer broke and the internet cafe, at the hospital, does not have internet right not.. so that is why I have not been doing more posting. Plus I don’t want to leave Kerrie and when i do it is generally to sleep a few hours. Please continue to check the gallery for updates from our family members, and WE will try to do a better job of calling our family so they can update all of you. Kerrie continues to show improvement in her…
-
Thursday, November 2nd
Kerrie has had a bunch of ups and downs this week and it’s been difficult for us to keep everyone updated. I’m not sure the last update that our Aunt Michelle put on the page, but will try to sum up the most important things in the last few days. She made it through the MRI, a few days ago, and proved the doctors wrong…. made it through without having to be intebated and put on a respirator. Yesterday we had some hope… she grabbed my coffee cup out of my hand and tried to take a drink through her oxygen mask, so we tried to give her some ice…
-
Sunday, october 29th
Kerrie is fighting as best she can. I don’t know what to tell, because it changes so much. CT scans, MRI and Angiogram show the infection in her brain is spreading, the blood clot appears to have gotten larger and it appears she has had a stroke. Most of the time she is not coherent.. she did respond to her niece Robyn, her nephew TJ and her friend Sandy Bliss and was able to say hello to them and tell them she loved them. Before they made us leave the room this morning she we were able to get some response from her. She knew we were there, knew we…
-
Tuesday – Thursday
I don’t have much time and the computer connection I am on keeps failing. I will try to update you as much as I can, but things change so rapidly I can’t keep up. Â Tuesday – She has severe headaches, face was numb and drooped as if a stroke. No stroke – thought it was bells-palsie. This was ruled out. Wednesday – She has had paralysis of the left side of her face and has lost vision in her left eye. Her eyelid will not open. CT scan showed possible bleeding in the brain. Taken for MRI. In severe pain, but not allowed pain meds so they would know…
-
Tuesday, October 24th… A Rough Day
I spoke with Kerrie last night and she sounded good… even said her throat and mouth were feeling better and that she wasn’t having difficulty talking. That lasted until sometime after 4:00am Sometime around 5:00am Kerrie was running a fever, her blood pressure was high, she was in a large amount of pain, one side of her face felt numb… and she thought she might be having a stroke. It was at this point she had them call Mom. It wasn’t a stroke, but Mom says it has been a pretty bad day. Her face is pretty swollen and the sores in her throat and mouth are bad enough now…
-
Monday, October 23rd
Day +6… almost one week out from transplant. To think this time, last week, I was sitting in the Guest Apartment at the hospital… afraid and dreading the morning. Kerrie is still doing as well as can be expected right now. Her platellets and Red Blood cells are low, so they gave her transfusions of both today. The sores, inside her mouth, and throat are getting pretty bad and she somtimes has difficulty with eating and talking… living on Orange Italian Ice, because it’s easy to swallow and makes her mouth feel better. When I left her, last night, her cheeks were all puffed up like a chipmunk.. and she…
-
An Update From Mom
Hello Everyone, If you have been following the website then you know what has been happening the last few days, bone marrow transplant and all. It has been pretty hectic….i worked Monday, went home and packed and moved to the guest housing at HFH with Jenn…….spent the evening with Kerrie then early to bed and up with Jenn in the a.m. to go get her catheter (only after I was able to give her the last two shots….tee hee). While we waited she kept saying how much of a coward she was…. and she was afraid……but never having had anything like this before anyone would be………i want to tell you………how…
-
Saturday, October 21st
We’re at Day +4 and everything still looks good! Kerrie’s blood counts have dropped considerably and they had to give her platellets today… probably another blood transfusion tomorrow or Monday. We took a short walk this morning and then prepared to have Kerrie take a shower. This is no easy task and involves placing a special kind of blanket around the floor of the shower ( to keep the water from flooding the bathroom), taping up her catheter so it doesn’t get wet, getting the IV cart into the bathroom and then getting her undressed. Just as she was ready to turn on the water her IV cart started beeping…
-
Thursday, October 19th
Day +2 and everything seems to be going as the doctors planned.. or at least that’s what they tell us! Kerrie’s blood counts are still dropping and she should be completely Nuetropenic ( without an immune system) by Friday. I questioned why the transplant was done before she was completely Nuetropenic, and the doctors explained it, but I don’t think I would be able to get the explanation right. Bottom line is the doctors says it is better this way. I’ll trust them on that. I’m finally able to walk without too much pain, but Kerrie doens’t feel much like walking at all and stayed in bed most of the…