Sunday, November 5th

we’ve had some good news today! The ICU team feels Kerrie is no longer in need of being in ICU and want to move her back to her old room, on P2, this afternoon. The BMT Team ( Bone marrow transplant team) is reviewing this to see if they agree.

Nuerology has decided they will not attempt a brain biopsy as the risks would be greater than the benefits, so it looks like that will not be happening.

The doctors don’t know anymore than they did before and leave it to Kerrie to stump them. The CT scans and MRI’s show the infection, or whatever it is, is spreading…. but she has been improving. As I said before, this could be the calm before the storm…so we are still very anxious about her condition.  The good thing is that ICU feels she is stable enough that she no longer needs to be there. We can’t take her home.. so taking her back to P2 is the closest we can get and the staff there loves her, so we are happy that this may happen.

Kerrie has been trying, desperately, to tell us something all day yesterday but we are not able to understand her. She has been wearing herself out trying to say whatever it is she wants to say and we can tell she’s frustrated. I hate to see her with tears running down her face, because we can’t understand her, but I am happy that she is getting well enough to try to communicate with us. She’s getting crabby with me driving her crazy… so that’s also a good sign. If she can get pissed at me she’s doing pretty good 🙂

We’re going to try a couple different things… I’ve written the alphabet on a piece of paper and we’re going to see if she can tell us what she’s saying by pointing the the letter, she knows some sign language… so I would like to see if she can spell it out for me. This may be difficult, since she would have to do it with her left hand… and we are going to try to see if she can type it out on a computer. We can’t take it into ICU, so that will have to wait until she goes back to the Bone Marrow Unit on P2

If she goes back to P2 she will still only be able to have two people in the room at a time, but she may be allowed visitors outside the immediate family. We don’t know yet. There is a guest bed in the room, so mom and I won’t have to sleep sitting up in a chair… it feels like a paradise compared to ICU

I don’t want to give anyone false hope.. Kerrie is still very much in danger, but for now she may be well enough to go back to the floor she likes and the group of people who really love her. Things could change in minutes, and we feel like we are sitting at the top of the rollercoaster hill…paused…waiting for the long drop down.. but for now we’ll take the E-stop we’ve been given ( joke for my CP  & GLWWK friends) and we’ll sit at the top of that hill as long as we can. We’re in no hurry for anyone to get to the top of the hill to restart the train ( another joke for my CP & GLWWK friends.. hey at least I can joke right now).

Today is our neice, Robyn’s, 13th birthday… It’s a big one for her and Grandma, Grandpa, Aunt Jenny and Aunt Kerrie feel really bad that we can’t be with her to help her celebrate today… But if she’s smart she’ll know she can use this as ammunition later to cash in on BIGGER presents :)   We love you Robyn and hope you have a great birthday. Aunt Jenny and Kerrie will definately make up for not being there.. you know we are a couple of suckers for our niece and nephew… so you can guarantee we’ll celebrate BIG as soon as we can.

As soon as we know Kerrie is officially being moved out of ICU I will get a post on the page, or make a call to one of our aunts.

She still needs our constant prayers… but for now, today looks like a good day…. and we’ll take it.

Jenn