I heard from Mom a little while ago… Dr. Jana has opted not to give Kerrie the Liver Biopsy, due to her platellet levels dropping, and is going to start her on steroids.  She feels Kerrie’s liver problems are Graft Vs. Host disease ( meaning my immune system doesn’t like her liver) and wants to start treating her right away. According to Dr. Jana, this is the first time she has started treating someone for Graft Vs. Host, before actually doing a biopsy to determine that’s the problem, but.. as usual.. Kerrie has turned out to be a special case. She doesn’t want to wait for Kerrie’s platellets to go…

Today’s code phrase for ice chips… “I need my car keys.” Kerrie let me sleep until 5:00am today.. very gracious of her! I awoke to my name being called and a plea for car keys. “Jenny… Jenny.. I need my car keys.” I was so tired I almost reached into my purse and handed her car keys to her, but instead I wiped my eyes and walked down the hall to get the precious cup of ice chips. She’s obsessed with these ice chips.. and this is NOT an exaggeration. She has to have them all the time or she gets irritated. We may have joked that she would become…

“Hello…” “Hello…” “Helloooo!” I wake up and look at the clock.. it’s 3:00am I’ve only been asleep since a little after 1:00am, so maybe I am dreaming. I roll over and look at Kerrie.. she’s waving to me and trying to get my attention. “Hello…” “HELLOOO!” “I’m awake Kerrie. What do you need?” “I need a piece of pizza.” I’m groggy, so it takes me a minute to figure out she wants a cup of ice chunks. “Kerrie, do you want some ice?”   “Yes and a piece of pizza”.  “Kerrie I can’t give you a piece of pizza, but I’ll go get some ice.” “O.K. Yes.” I crawl out of…

Running late for work, getting into the shower and my phone rings.. It’s Mom, and my heart stops because she’s calling so early. “I just thought I would tell you what Kerrie had for breakfast! “WHAT???” I say… Kerrie hasn’t had anything to eat or drink in over a month. Kerrie was able to drink two small, one ounce, medicine cups of water. When she finished the first one she handed it back to Mom and said, “I want more”. No more wet washcloths for this girl! For anyone whose been keeping track, today marks the beginning of Kerrie’s 5th month in the hospital. She’s had so many room changes,…

So… I called Mom to see how Kerrie is doing.. Kerrie answered the phone 🙂 She said “Hi. How are you?” I was so shocked I almost didn’t respond, but then asked how she was. She said she was fine and was giving the phone to Mom. Even though those brief words probably tired her out it was a nice surprise and I’m glad she used all that energy to surprise me. Even though her speech is still far from perfect, she was easy enough to understand and I can hear “Kerrie’s voice” when she talks. She hasn’t sounded like Kerrie in a while, so this made the surprise even…

Got a phone call from Mom and Kerrie still seems to be doing well. They have taken her for another follow-up CT-Scan, which will probably happen frequently, and just keeping an eye on her to see how she is doing. They want to keep her in ICU a little longer, for observation, so they won’t be moving her to P2 today. That’s fine with me… two days seemed a little soon for my liking, but they still feel she’s doing well enough that she will be out of ICU in another day or two. Not too many details right now, but I suppose that’s a good thing too. If there’s…

I’m sorry it has taken me so long to put an update on here. I know people have been continuously checking, and I had hoped to do it last night.. but didn’t happen. I drove to Mom’s, to get computer access and to give you the latest. This could be another long post… so get comfortable. SUNDAY, NOVEMBER 26th ( EVENING) Kerrie was taken to Neuro-ICU so they could keep an eye on her and start prepping her for Surgery on Monday. They were supposed to be giving her extra blood and platellets and doing some other stuff, which is why they insisted on moving her in the afternoon instead of moving her…

I am never going to try to go home for the week again! I am convinced this is some kind of a curse.. It hasn’t even been two hours since I put on the last post and Mom has just called. Kerrie is being moved to Nuerological ICU. The MRI did show a change.. in an absess in her sinus cavity. I guess it was there before, but has now gotten much larger and they want to operate on it tomorrow. Every time they’ve talked about doing any type of Nuerosurgery before they have said it would be too risky. Not sure what has changed now.. unless they feel her…

Kerrie’s had a decent day today… We watched Gone With The Wind, which is always exciting, and generally layed around all day. They took her for an X-Ray, on her right arm and shoulder, but haven’t gotten the results of those yet. Hopefully, they will find there is nothing wrong and all the pain is muscular but she’s been in so much pain, when we try to move her, that we’re concerned something has happened when we’ve been moving her or putting her through her excersizes. Got the initial results of the MRI and it shows no change in the blood clot, or the infection… we knew it wouldn’t come…

Hello Everyone, Am home for a change today and want to take a few moments to say hi. Hope you all had a great Thanksgiving. We did. Ker’s dad stayed with her for the holiday and Jenn and I (with Ted) were able to go to Ron’s and share our blessings with his family and Alisa’s family. It was really wonderful, the company, the food and the spirit. Jenn is still here and keeping an eye on her sister… Kerrie is talking more each day…. she’s up to sentences, although not always clear and she mixes words…. she wanted me to cover the computer screen yesterday, actually she was asking…