Saturday, November 25th
Hello Everyone,
Am home for a change today and want to take a few moments to say hi. Hope you all had a great Thanksgiving. We did. Ker’s dad stayed with her for the holiday and Jenn and I (with Ted) were able to go to Ron’s and share our blessings with his family and Alisa’s family. It was really wonderful, the company, the food and the spirit.
Jenn is still here and keeping an eye on her sister… Kerrie is talking more each day…. she’s up to sentences, although not always clear and she mixes words…. she wanted me to cover the computer screen yesterday, actually she was asking me to pull the curtain in front of the window in her room. It’s a combination of listening carefully and watching where she’s looking and pointing to figure some things out.
Last night she told Jenn she was getting ready to go and would be leaving in a few minutes. Jenn asked where she was going, but Kerrie said she didn’t know yet.. just that she was getting ready to go. When Jenn asked if Kerrie was going to leave her there all alone Kerrie said “No. I plan on taking you with me.” Kerrie’s in a hurry to get home, but she has a lot of work to do before that will be possible. Every time Kerrie refuses to do excersizes, or wear her oxygen mask, Jenn gets tough with her and tells her if she wants to go home she darn well better do what she’s told.. instead of what she feels like doing. In other words, “Suck it up”.. you wan’t out you are going to have to work for it.
The doctor’s say this will be a very slow long process. She will reguire the isolation for the bone marrow for some time to come before rehab can be considered. In the meantime the therapists see her for exercises and we try to do them the rest of the time. She is complaining of a lot of pain on her right side, especially her right forearm and hand. I am concerned that she may have been injured somewhere during one of her moves sometime, the doctor didn’t seem concerned yesterday, but it’s worse today so I am hoping that the nurse will be able to get an order for an xray so we can make sure.
she had an MRI this morning. this is to determine any changes or improvement. There is just too many details about what has been going on to tell all. I keep a daily log of happenings because I can’t even begin to remember things minute to minute much less day to day.
Bottom line……….she is slowly getting better. I don’t care what the MRI says, I like what I see. We still have to deal with bone marrow transplant issues. There is now a possiblity that she might be having a mild rejection reaction to the transplant. This was expected (and actually wanted before she got so sick) but treatment is complicated by her condition……..so hopefully, if this is occuring it is mild and easily controlled. Her liver enzymes are still really high, so there is a possibility they will do a liver biopsy on Monday. Still waitng to hear the final word on this.
I will keep in touch and in the meantime ask that you continue to keep Kerrie in your thoughts and prayers. We know that’s why she still here and why she continues to improve. Thank you all so much.
Love You All Lots
Joan ( with some additions from Jenn)
10 Comments
Ron
eevery minute of every day you are all in my thoughts a nd prayers keep up the fight!!!!! take care of yourselves as well. you are all kerries world. happy holidays! make a wish on a star !!!!!!!!!!!!!! lots of love and prayers
Ron
Deb Kayga
I’m glad you had a nice Thanksgiving, you definately deserve it!! Had a few turkeys delivered at NOMC! You all are always in our thoughts and prayers!!!! Deb (pm RN)