Tuesday, November 21st (11:30pm)

I spoke with Mom a little while ago and Kerrie seems to be doing fine. She’s still a little groggy from the anesthesia, but the only problems seems to be she’s a little sore where they put the feeding tube in. I suppose she would be… hopefully it doesn’t last too long. Mom gave me some of the details of the surgery, but since I don’t “do blood, needles, surgery, etc.” too well I will just leave it at “she has her feeding tube.”

There was one small, teeny tiny, itsy bitsy incident today.. when she was being moved from her Stryker chair to her bed the catheter port in her chest came out. This is the nicest way I can think to say it.. since I have had nightmare visions of this happening since the day she had her first one put in and actually hearing about it is making me sick to my stomache ( and will no doubt give me horrible nightmares tonight)

She’s O.K., and the first thing she did was ask if she was O.K… and then one of the BMT doctors put in a temporary catheter. She will need to have the permanent port replaced tomorrow. Alright.. I need to take a minute to wait for the nausea to go away before I continue..

Hmm.. I think I’m alright now, as long as I don’t think about it.. and Kerrie’s fine, so I guess that’s the most important thing.

Mom did get clarification on her anti-fungal medications being stopped and only one of the three anti-fungal medications is being discontinued.

Her Liver Enzymes hit 1000 ( I guess this is really bad), so the one medication is being stopped in the hopes it will bring this number down. So our worry that the infection in her brain won’t be treated is not an issue. Still no word on when the MRI will be done, but this isn’t the first time we’ve waited days for her to actually be put on the schedule. Lots and lots of people needing MRI’s, emergency cases are given priority and then they are scheduled based on severity of need. This must be a good sign if Kerrie has not been considered a priority, but we still want to know what’s going on.

I’ll be going back to Michigan, tomorrow, and am hoping Kerrie will be feeling better and more alert. If Ron had her playing Tic-Tac-Toe the other day I’m hoping to get her playing a few other games. I would love to see if she could handle a game of Othello, but that would probably be a little too much for her right now. You never know though.. she could probably still beat me, regardless of what her mental state is 🙂

Time for me to get some sleep and hopefully not have dreams about catheters. If we’re lucky, her room will be hooked up to the internet by the time I get there and I will able to do more frequent posts this weekend.. but don’t count on it!

I’ll do my best!

Jenn