Friday, September 1
Hi Everyone,
Well, I am sending a quick bit of news (in hopes there are no changes by tomorrow). We are getting a bit hesitant to say much as it seems as soon as we do the informtion changes. If you feel a little confused by all this, believe me, we are as well.
As I informed you a few days ago, the doctor stated on Monday that she no longer believes Kerrie is in remission. She based it on those darn BLAST (phooey, yuk, hate ’em ) cells. On Tuesday they took out Kerrie’s central line (IV in her neck). On Wednesday she had another one put in as well as got mugged (her MUGA scan). She tolerated all well. Thursday morning she had another bone marrow biopsy. It was pretty miserable as she didn’t get any sedation until the last minute and it didn’t really take effect until it was over. The doctor says she has the prize for the hardest bones in the world. This made getting the specimens kind of rough for him and real rough for her. (She did sleep all afternoon however).
Today they have started everything back…TPN (feeding thru the vein), Antibiotics, Steroids, etc etc etc. and this afternoon will be the first dose of chemo. Two drugs, five days, and much stronger than the first round (several times stronger). Hopefully she will weather this one as good as the last and only get a fraction of the reaction they have predicted.
Kerrie is doing ok, but it’s hard for her not to get down. This has been a very frustrating and discouraging couple of weeks. Doctor says she can still have visitors. no more than 2 at a time. So please don’t be afraid to come visit because of this development. emails are also welcome.
Have a good holiday weekend everyone, will update next week……. and thanks again for the calls, cards, notes, support, energy and love that you are sending to Kerrie and the rest of us……it is needed and we are gathering it all in and using it every day.
Love Ya
Joan